Cerebral Palsy Guidance was created to provide answers and assistance to parents of a child with cerebral palsy (CP). Its goal is 'to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance'. It covers cerebral palsy from all angles–from symptoms, causes, and treatment, to information on daily living, communication, transitioning to adulthood etc. Cerebral palsy is a neurological disorder that affects a child’s movement, motor skills, and muscle tone. Other associated medical issues include speech problems,learning disabilities and problems with hearing and vision.
SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Its three stated aims:
DEVELOP
Develop and support a community of families of children affected by undiagnosed genetic conditions.
SUPPORT
Support the development of high quality information and services for families of children affected by undiagnosed genetic conditions.
RAISE
Raise public and professional awareness of undiagnosed genetic conditions and the unique challenges faced by affected families.
The Makaton Charity: information, advice and training in Makaton; Makaton is a language programme using signs and symbols to help people to communicate, designed to support spoken language and the signs and symbols are used with speech, in spoken word order
A comprehensive directory of therapies and therapists.
Includes alternative and complementary therapies, and more 'mainstream' therapies such as speech and language therapy.
A wide variety of therapies and therapists are listed. Rescare offers no specific recommendations or endorsements, and you are advised to perform your own investigations re any listing.