Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, brain injuries, or birth injuries.
It was created to serve the individuals and families who have been diagnosed with cerebral palsy (CP). Its aim is to provide information and support, by making resources and education available to those affected by CP.
It collates and researches the most up-to-date information and resources available e.g. by monitoring medical journals, medical literature, trusted medical websites and peer-reviewed articles.
Cerebral Palsy Guidance was created to provide answers and assistance to parents of a child with cerebral palsy (CP). Its goal is 'to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance'. It covers cerebral palsy from all angles–from symptoms, causes, and treatment, to information on daily living, communication, transitioning to adulthood etc. Cerebral palsy is a neurological disorder that affects a child’s movement, motor skills, and muscle tone. Other associated medical issues include speech problems,learning disabilities and problems with hearing and vision.
Choice Forum describes itself thus:
"Since 2000, the Choice Forum has been been the place to discuss issues affecting the lives of people with learning disabilities in the UK. You are invited to join the forum, ask questions. share information, and talk about issues that are important. Here you'll find lots of mutual support, experience and lots of knowledge."
If you join the Choice Forum, it offers a range of information on issues relating to learning disability, allows you to participate in forum discussions, and issues regular email bulletins.
The Choice Forum is run by Together 4 Change, in partnership with the Foundation for People with Learning Disabilities.
Disability Now: online campaigning/blogging magazine for learning and physically disabled
Every Disabled Child Matters (EDCM): run by a consortium of four organisations, Contact a Family, the Council for Disabled Children, Mencap, and the Special Educational Consortium; campaigns to raise the political profile of disabled children and their families within central and local government.
In Control : an independent social enterprise with charitable status; pioneered the concept of self-directed support and developed individual budgets/personal budgets; a conspicuous advocate the self-directed support model
Office for Disability Issues (ODI) is part of the Department for Work and Pensions; works closely with the Minister for Disabled People other government departments disabled people and a wide range of external groups; leads the government’s vision of enabling disabled people to realise their aspirations and fulfil their potential; believes disabled people should have the same choices and opportunities as non-disabled people; Note - useful entry point for information on 'disability legislation'
Disability Issues website: collects latest news and blog items from the web relating to social care and disability
Scope UK Scope exists to make this country a better place for disabled people and their families. runs a range of services raising awareness of the issues that disabled people face and influencing change across society; provides support advice and information for disabled people and their family members.
SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Its three stated aims:
DEVELOP
Develop and support a community of families of children affected by undiagnosed genetic conditions.
SUPPORT
Support the development of high quality information and services for families of children affected by undiagnosed genetic conditions.
RAISE
Raise public and professional awareness of undiagnosed genetic conditions and the unique challenges faced by affected families.